Research Information System
Thesis Type: Expertise In Medicine
Institution Of The Thesis: Gazi Üniversitesi, Tıp Fakültesi, Turkey
Approval Date: 2019
Thesis Language: Turkish
Student: ZEYNEP TORUNOĞLU
Supervisor: AYŞE DENİZ OĞUZ
Open Archive Collection: AVESIS Open Access Collection
Abstract:Atrial Septal Defect (ASD) is seen as an isolated anomaly in all congenital heart diseases by 5-10%. ASD is a common congenital disorder with a prevalence of about 2 per 1000 live births. Nowadays, the importance of quality of life is emphasizedin many chronic disease monitoring. In the case of the child's disease, the differences between the attitudes and behaviors of the parents and the tasks they undertake in this period are also an important detail in the process the diagnosis and treatment of the child's disease and the end of the disease. However, in children with heart disease, studies assessing the patient's own perceptions or parents' perceptions of the child's psychological and social functions and children's health-related quality of life are rare. It has been reported that there is a decrease in quality of life in children with congenital heart disease and their families. In isolated ASDs operated on time, the expectation; is a normal life process and quality. In the pediatric patients of Gazi University Faculty of Medicine, both transcatheter and surgical ASD repairs have been successfully performed for many years.The study is included a total of 60 children and anyone of their parents, 15 surgical ASD closure, 15 transcatheter ASD closure children aged 8-18 years with no additional chronic disease followed at Gazi University Faculty of Medicine, Department of Pediatric Cardiology and 30 healthy children without any additional history of chronic or heart disease admitted to the general pediatric outpatient clinic. In our study, we evaluated quality of life and parental attitudes of the patients who underwent transcatheter or surgical ASD closure during childhood and who continued their daily activities similarto their peers and control patients with no cardiac or chronic disease, we found the relationship between them and we made comparisons amongst themselves and the healthy group. We also examined the experience of closure processes of patient groups using content analysis. In the results of the study, the quality of life of the patients who underwent transcatheter and surgical ASD closure and their parental attitudes were similar in all subscales with a healthy group and no statistically significant difference was found. It has been determined that scar tissue present in girls with surgical closure is discomfortable and parental attitudes differ according to opposite sex. In today's conditions, where surgical closure is successfully performed, more information about the surgical incision applied to patients and their parents should be given and they should be given the right to choose. When the memories of patients undergoing transcatheter or surgical closure were questioned, it was determined that in patients without social support, negative moment encodings fear and anxiety in the foreground has been found to be present. It will be guiding forus to get valuable information like evaluation of quality of life, parental attitudes, of the expectations of their closure process and memories of children with ASD closure application, definition of their expectations and elaboration of intervention strategies focusing on their health needs; for aims like cooperation with families for social and psychological support and selection of appropriate initiatives in accordance with expectations with these assessments. Therefore, further research is required.