Living with Glutaric Aciduria Type 1: Experiences of Adolescents and Their Families Living in Germany
Gazi Medical Journal, cilt.32, ss.69-75, 2021 (ESCI, Scopus)
- Yayın Türü: Makale / Tam Makale
- Cilt numarası: 32
- Basım Tarihi: 2021
- Doi Numarası: 10.12996/gmj.2021.13
- Dergi Adı: Gazi Medical Journal
- Derginin Tarandığı İndeksler: Emerging Sources Citation Index (ESCI), Scopus, Academic Search Premier
- Sayfa Sayıları: ss.69-75
- Anahtar Kelimeler: Adolescent, family, metabolism, quality of life, METABOLISM, CHILDREN, PARENTS, STRESS
- Gazi Üniversitesi Adresli: Evet
Özet
Objective: This study was conducted to investigate the effects of treatment of a child with glutaric aciduria type-1 diagnosis on the health-related quality of life of a child and his family via in-depth interviews.