Living with Glutaric Aciduria Type 1: Experiences of Adolescents and Their Families Living in Germany

Sarı Ç., Das A. M.

Gazi Medical Journal, cilt.32, ss.69-75, 2021 (ESCI) identifier identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 32
  • Basım Tarihi: 2021
  • Doi Numarası: 10.12996/gmj.2021.13
  • Dergi Adı: Gazi Medical Journal
  • Derginin Tarandığı İndeksler: Emerging Sources Citation Index (ESCI), Scopus, Academic Search Premier
  • Sayfa Sayıları: ss.69-75
  • Anahtar Kelimeler: Adolescent, family, metabolism, quality of life, METABOLISM, CHILDREN, PARENTS, STRESS
  • Gazi Üniversitesi Adresli: Evet

Özet

Objective: This study was conducted to investigate the effects of treatment of a child with glutaric aciduria type-1 diagnosis on the health-related quality of life of a child and his family via in-depth interviews.