Living with Glutaric Aciduria Type 1: Experiences of Adolescents and Their Families Living in Germany


Sarı Ç., Das A. M.

Gazi Medical Journal, vol.32, pp.69-75, 2021 (Peer-Reviewed Journal) identifier identifier

  • Publication Type: Article / Article
  • Volume: 32
  • Publication Date: 2021
  • Doi Number: 10.12996/gmj.2021.13
  • Journal Name: Gazi Medical Journal
  • Journal Indexes: Emerging Sources Citation Index, Scopus, Academic Search Premier
  • Page Numbers: pp.69-75
  • Keywords: Adolescent, family, metabolism, quality of life, METABOLISM, CHILDREN, PARENTS, STRESS

Abstract

Objective: This study was conducted to investigate the effects of treatment of a child with glutaric aciduria type-1 diagnosis on the health-related quality of life of a child and his family via in-depth interviews.