"Breaking bad news in spinal cord injury a qualitative study assessing the perspective of spinal cord injury survivors in Turkey",

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Özyemişci Taşkıran Ö., Coşkun Ö., Budakoğlu I. İ., Demirsoy Ü. N.

JOURNAL OF SPINAL CORD MEDICINE, cilt.41, sa.3, ss.347-354, 2018 (SCI-Expanded)

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 41 Sayı: 3
  • Basım Tarihi: 2018
  • Dergi Adı: JOURNAL OF SPINAL CORD MEDICINE
  • Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Scopus
  • Sayfa Sayıları: ss.347-354
  • Açık Arşiv Koleksiyonu: AVESİS Açık Erişim Koleksiyonu
  • Gazi Üniversitesi Adresli: Evet

Özet

Objective: This study aims to investigate the process of breaking bad news from the perspective of spinal cord injury survivors.

Design: A cross sectional, qualitative study.

Setting: Community.

Participants: Fourteen spinal cord injury survivors.

Interventions: Subjects participated in a semi-structured interview about ‘when’, ‘where’ ‘by whom’ and ‘how’ they received and ‘would’ prefer to receive bad news.

Outcome measures: Answers to ‘how’ questions were coded according to SPIKES protocol (Setting, Perception, Invitation, Knowledge, Empathizing, Summary).

Results: Eight participants (57%) reported that they received bad news from a physician, mostly during rehabilitation. All would prefer to be informed by a physician and majority preferred to be gradually informed during rehabilitation. Half were not satisfied with the content of information. Only half felt that his/her physiatrist understood his/her emotional distress. Majority of participants who received bad news from physicians reported that the setting was private and their family members accompanied them.

Conclusion: Most spinal cord injury survivors were unsatisfied with knowledge and emotional support provided by rehabilitation physicians. Participants would prefer to receive bad news by a senior physiatrist in a planned meeting during rehabilitation.