Caregiver Perspectives on Challenges of Caring for Individuals with Intellectual Disability: A Qualitative Study
INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, cilt.64, sa.2, ss.173-185, 2026 (SSCI, Scopus)
- Yayın Türü: Makale / Tam Makale
- Cilt numarası: 64 Sayı: 2
- Basım Tarihi: 2026
- Doi Numarası: 10.1080/19349491.2026.2642623
- Dergi Adı: INTELLECTUAL AND DEVELOPMENTAL DISABILITIES
- Derginin Tarandığı İndeksler: Social Sciences Citation Index (SSCI), Scopus, Agricultural & Environmental Science Database, Child Development & Adolescent Studies, CINAHL, EBSCO Education Source, Education Abstracts, EMBASE, ERIC (Education Resources Information Center), MEDLINE, Public Affairs Index, Academic Search Ultimate (EBSCO), Social Science Premium Collection (ProQuest), Biomedical Reference Collection: Corporate Edition (EBSCO), Education Collection (ProQuest), Education Source Ultimate (EBSCO), Health Research Premium Collection (ProQuest)
- Sayfa Sayıları: ss.173-185
- Gazi Üniversitesi Adresli: Evet
Özet
This study examined the challenges encountered by caregivers of individuals with intellectual disability in a residential care home and their suggested solutions. A basic qualitative design within the interpretive paradigm was employed, using purposive sampling to recruit 21 caregivers. Thematic analysis revealed three overarching themes: disability-related challenges, care home-related challenges, and strategies to improve quality of life. Disability-related challenges involved behavioral issues, cognitive impairments, and difficulties in managing chronic conditions. Care home-related challenges included limitations in the physical environment and care management processes. Suggested improvements emphasized fostering social inclusion, enhancing support for individuals with disabilities, and upgrading the care environment. The findings highlight the dual impact of individual and environmental factors on caregiving and offer actionable strategies for improvement. Cette & eacute;tude a examin & eacute; les d & eacute;fis rencontr & eacute;s par les proches aidants de personnes ayant une d & eacute;ficience intellectuelle dans un & eacute;tablissement de soins r & eacute;sidentiel et les solutions qu'ils ont propos & eacute;es. Une m & eacute;thodologie qualitative dans le cadre du paradigme interpr & eacute;tatif a & eacute;t & eacute; utilis & eacute;e & agrave; l'aide un & eacute;chantillonnage raisonn & eacute; permettant de recruter 21 proches aidants. L'analyse th & eacute;matique a r & eacute;v & eacute;l & eacute; trois th & egrave;mes g & eacute;n & eacute;raux : les d & eacute;fis li & eacute;s au handicap, les d & eacute;fis li & eacute;s & agrave; l'& eacute;tablissement de soins et les strat & eacute;gies visant & agrave; am & eacute;liorer la qualit & eacute; de vie. Les d & eacute;fis li & eacute;s au handicap concernaient les probl & egrave;mes comportementaux, les troubles cognitifs et les difficult & eacute;s & agrave; g & eacute;rer les maladies chroniques. Les d & eacute;fis li & eacute;s & agrave; l'& eacute;tablissement de soins comprenaient les limitations de l'environnement physique et les processus de gestion des soins. Les am & eacute;liorations sugg & eacute;r & eacute;es mettaient l'accent sur la promotion de l'inclusion sociale, le renforcement du soutien aux personnes handicap & eacute;es et l'am & eacute;lioration de l'environnement de soins. Les r & eacute;sultats soulignent le double impact des facteurs individuels et environnementaux sur la prestation de soins et proposent des strat & eacute;gies concr & egrave;tes d'am & eacute;lioration. Este estudio examin & oacute; los retos a los que se enfrentan los cuidadores de personas con discapacidad intelectual en una residencia asistida y las soluciones que proponen. Se emple & oacute; un dise & ntilde;o cualitativo b & aacute;sico dentro del paradigma interpretativo, utilizando un muestreo intencional para reclutar a 21 cuidadores. El an & aacute;lisis tem & aacute;tico revel & oacute; tres temas generales: retos relacionados con la discapacidad, retos relacionados con la residencia asistida y estrategias para mejorar la calidad de vida. Los retos relacionados con la discapacidad inclu & iacute;an problemas de comportamiento, deficiencias cognitivas y dificultades para controlar enfermedades cr & oacute;nicas. Los retos relacionados con la residencia inclu & iacute;an limitaciones en el entorno f & iacute;sico y en los procesos de gesti & oacute;n de los cuidados. Las mejoras sugeridas hac & iacute;an hincapi & eacute; en fomentar la inclusi & oacute;n social, mejorar el apoyo a las personas con discapacidad y mejorar el entorno de cuidados. Los resultados ponen de relieve el doble impacto de los factores individuales y ambientales en la prestaci & oacute;n de cuidados y ofrecen estrategias viables para mejorar.