Evaluation of quality of life of healthy siblings of children with chronic disease

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DİNLEYİCİ M., Dagli F. S.

TURK PEDIATRI ARSIVI-TURKISH ARCHIVES OF PEDIATRICS, cilt.53, sa.4, ss.205-213, 2018 (ESCI) identifier identifier identifier

  • Yayın Türü: Makale / Derleme
  • Cilt numarası: 53 Sayı: 4
  • Basım Tarihi: 2018
  • Doi Numarası: 10.5152/turkpediatriars.2018.6778
  • Dergi Adı: TURK PEDIATRI ARSIVI-TURKISH ARCHIVES OF PEDIATRICS
  • Derginin Tarandığı İndeksler: Emerging Sources Citation Index (ESCI), Scopus, TR DİZİN (ULAKBİM)
  • Sayfa Sayıları: ss.205-213
  • Anahtar Kelimeler: Chronic disease, healthy sibling, quality of life, ATTENTION-DEFICIT/HYPERACTIVITY DISORDER, CHILDHOOD CHRONIC ILLNESS, PSYCHOLOGICAL ADJUSTMENT, ADULT SIBLINGS, YOUNG-PEOPLE, CANCER, DISABILITIES, EXPERIENCES, DEPRESSION, SYMPTOMS
  • Gazi Üniversitesi Adresli: Evet

Özet

The quality of life determination of children with chronic disease is closely related to treatment success. Quality of life assessment studies revealed that it was not limited to the individual, the quality of life of the family members also had to be assessed. Along with the child being diagnosed with chronic illness, some changes occur in the family structure, and in family roles. Quality of life assessment studies in healthy siblings generally indicate a global influence. These children live in different senses such as closure, aggression, depression, anxiety, guilt, and isolation. Psychosocial impact (short or long-term) of healthy siblings have been associated with disease type, severity, disease duration, age, sex, and ability to cope. Further comprehensive studies among healthy siblings of children with chronic disease about quality of life are needed. Building support groups (especially family support groups) to express feelings and thoughts freely for healthy siblings can positively affect the well-being and self-esteem of the child.